Help me with MS

[Dozyproductions]

I just got woken up to a phone call from a good friend who told me she just came back from the ER with the doctors telling her that there's a good chance she has multiple Sclerosis. Oddly they haven't run any tests on her so nothing is final but I know she's been suffering from extreme anxiety attacks for the past 2 years being the age of 23 right now. In these attacks she always goes numb in her hands and arms which is a common symptom.

I have epilepsy and at first hearing about it I was at a loss. I lost my career and any certainty of who I was. Her phone call set me back to the same loss of words I had then. I know to research this thing is the first step but I honestly don't know what to do or say that can let me help her. If any of you are dealing with this personally or for some one you know I just ask for any advise. Anything from what treatments worked and how to deal with this physically and especially mentally. Thank you.

[Stanley Rockafella]

Sorry to hear bro, that's terrible to hear.

[e30vert]

My sympathies ! My mother was diagnosed with MS early in adulthood and it was a debilitating disease throughout her life. She lived many years with the disease and I cannit sugar coat it and say that her quality of life was great. She progressivly lost the ability to walk and was wheelchair bound. Then she was bed ridden after that . During this time we cared for her at home with a live in caretaker. Caretaker would handle things like preparing food. Making sure she was taking her prescribed pills on time every time. Keeping her hydrated and performing basic physical therapy which included helping her stretch out arms and limbs that were all but unusable . Care taker also did regular repositioning so as to help with bedsores which were a constant battle. My mother was often in pain and experienced tremors which caused her to shake her arms repeatedly.

Unfortunately , having lived through this with someone I loved so dearly I know first hand that this is not a comfortable existence by any stretch of the imagination. Eventually, convalescent care was needed for her as we could no longer care for her at home . This was in the early eighties and the cost AFTER medical insurance paid its part was roughly 3 grand a month.
Physically debilitating while metal faculties remain until the end coupled with excruciatingly expensive for care and treatment over the course of the illness .

I would not wish this on anyone as I have lived through it as a son.

[Dozyproductions]

Im super sorry that you had to deal with that. I swear this kind of shit happens too often to good people.

[Bglad]

One of my wife's good friends was recently diagnosed. It's a sad thing to deal with.

[nl328i]

While I do not have any personal experience with the disease, I was recently speaking with a colleague who had been diagnosed. He actually went to bulgariA and had that vein opening surgery done. He said the results are really good. He told me he had been having trouble walking and the week after surgery went out dancing. Now I don't want to give any false hope here, as I know the surgery is very controversial, but I wanted to let you know what he told me.

[slammin.e28]

Sorry to hear! On a side note, bee stings. Seriously. My dad keeps honey bees and used to take them to places for people's treatment. Talking with the doctors, they'd noticed that men with MS, the bee stings pretty much halted the effects, but they didn't seem to get any better. Women, on the other hand, seemed to progress, and even began walking again.

This was several years ago though, so I could be talking out of my ass, but it's something to look into if you're (she is) looking for an alternative treatment.

[Pac1373]

Dozy,

a couple of things. it usually takes months and hella testing to give a "sure" diagnosis of MS, also there are about a thousand things that can look like MS early on.

she really REALLY shouldn't get too stressed out at this point.

If she has a Family History Mom, Grand Mom, etc there is a larger %'age that she will contract it, it is Much more common for Females to get it in this hereditary fashion, men can too, just not as often as women.

e30 Vert's Mother had a similar acuteness as My maternal Grandmother. My Mother was Diagnosed in her 30's however, and although she has her "Days" imbalance, difficulty with fine motor skills, etc, it is not ANYWHERE on the same level as her mom's disease.

the symptoms are wide ranging in effect and severity depending on the individual.

the procedure that NL328 speaks of was initially thought to hold some promise, and although immediately after the procedure there *seems* to be some improvement, further study seems to be pointing that it comes back, and, in some cases stronger. also there are often side effects.

I think that I had heard something some time back as to Slammin's comment on bee venom, but have not heard anything on that front for a long time.

but and I mean BUT the worst thing she can do is go on the fucking internet Medical site's and start looking through all this. I mean the stress level going up through the roof alone will make her feel like she is dying. Internet self-diagnosis is about the worst thing that has ever happened to people...especially if they trend to the side of Hypocondria.

that last part is just my opinion

I hope that this was just some Dr. or medical professional making an offhand remark, because that is a bunch of stress without actually diagnosing the disorder.

thoughts are with her.

tell her she should remain upbeat.

[maccckkk thomson]

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[Pac1373]

FFS. this is so not the type of thread to spam.

I can not wait for the app/Program that allows you to reach through the internets and punch someone in the Balls.

[Dozyproductions]

Thanks you guys. Seriously... I'll try to tell her not to start freak yet since she hasn't gone through the motions of tests. My parents freaking about my condition was probably the last thing I needed so thanks for clearing the mind here you guys. Jesus, I just hope that this ends way better than how it can.

[GunMetalGrey]

Is it bad that I came in here assuming to read about MegaSquirt?
Try to stay positive until you are for sure! And even after that make the best of it.
Sorry to hear bud

[FLG]

Gun I thought the same thing.


As stated see how things go first before you get upset over what could be nothing.

Sent from my Galaxy Nexus using Tapatalk 2

[Dozyproductions]

I know you don't care or need to care on whats going on but you guys calmed me down enough to be able to talk to her today and calm her down, heh. She's going in with good spirits. Thanks again.

[oldmann]

My son who is 28 was diagnosed with MS 9 months ago. 1st attack for him was almost his last.
2 weeks in the hospital with daily infusion of massive doses of steroids to try to halt progression of the disease.

MRI showed massive scarring of the surface of the brain, Temporarily lost alot of motor skills, balance, vision impaired.
The only medication deemed appropriate for his condition was Tysabri. An all or nothing proposal type thing.

8 months of Infusions has stopped progression of the disease and he has regained almost normal functions again.

The mental part of being hit with something that will eventuallly kill you seems to be the hardest to deal with for him.

Stand with your friend and offer whatever support you can. It means alot.
If she has MS, there are things that can help, and people to get her that help.

Good luck, God bless.